Inspiration Archives | Life with Scoliosis

Scoliosis Awareness Month 2021 – Share Your Story: Emily Hale

Posted on May 30, 2021June 9, 2021 by Louise

My story – spinal fusion and achievement against adversity My name is Emily Hale, I’m 23 years old and the Founder and MD of Build & Breathe, an online fitness studio tailored to those with Scoliosis & Spinal Fusions. Rather than just looking at the physical side of living with Scoliosis, we look at the whole person including the potential emotional impact of diagnosis and surgery. I was diagnosed at 14 years old – this can be a tricky time...Read More

Scoliosis Awareness Month 2021: Share Your Story – Sarah

Posted on May 21, 2021May 30, 2021 by Louise

June is scoliosis awareness month and as part of this, I will be sharing your inspiring scoliosis stories on my blog and via my Instagram. If you’d like to get involved and help to share awareness, please contact me 🙂 Share Your Scoliosis Story - Sarah Hi, I am Sarah, a 23 year old from Manchester in the UK! I was first diagnosed with Scoliosis at the age of 13 following a trip to hospital for an X-ray on my lungs as I...Read More

Scoliosis Awareness Month 2021: Share Your Story – Shannon

Posted on May 21, 2021May 30, 2021 by Louise

June is scoliosis awareness month and as part of this, I will be sharing your inspiring scoliosis stories on my blog and via my Instagram. If you’d like to get involved and help to share awareness, please contact me 🙂 Share Your Scoliosis Story - Shannon Hi my name is Shannon, I’m 19 years old. I have suffered with scoliosis and this my story and how my life is now. In July 2014, I was on holiday and my mom asked me to...Read More

Scoliosis Awareness Month 2021: Share Your Story – Imogen

Posted on May 9, 2021May 30, 2021 by Louise

As part of scoliosis awareness month 2021, I will be sharing your inspiring scoliosis stories on my blog and via my Instagram. Scoliosis awareness month is June. If you'd like to get involved and help to share awareness, please contact me :) Share Your Scoliosis Story - Imogen. Hi my name is Immi and I'm 21 years old. My story began back in early 2015 just before my 15th birthday. I started getting lower back pain but my mum told...Read More

10 Inspiring Women With Scoliosis

Posted on February 12, 2021February 13, 2021 by Louise

As March 8th is International Women's Day, I thought I would share 10 inspiring women with scoliosis. Hopefully, this post will show that, if you are a woman with scoliosis, it certainly doesn't have to hold you back. There is really no limit to what you can achieve! Lets join together and celebrate some amazingly inspiring women with scoliosis. 10 Inspiring Women with Scoliosis Eva Butterly Eva Butterly Eva is an amazingly inspirational scoliosis warrior. With severe scoliosis, she dedicates...Read More

Your Inspiring Stories: Lovaine Cohen

Posted on January 21, 2021January 21, 2021 by Louise

Lovaine was diagnosed with Ankylosing Spondylitis (AS) about 20 years ago. As a result, she has lived with chronic pain for a very long time. She's also had both of her hips replaced and has some fusion in her upper neck. In this post, read about Lovaine's journey with AS and how she changed her victim mentality mindset. Lovaine's Story I have lived for over 20 years with Ankylosing Spondylitis with difficulties, twists, and turns. I was a healthy kid...Read More

Interview with Freya – founder of Back the Back Walk for Scoliosis

Posted on May 28, 2019April 12, 2020 by Louise

Hi Freya! Tell me a bit about yourself and your scoliosis history, how old were you when you first diagnosed and how did you feel at the time? Hi Louise! I am the founder and organiser of Back the Back Walk. I'm from Buckinghamshire, I have just turned 20, I finished school two years ago, and I am going to Durham University this September to study Music, first study voice. I was diagnosed with Adolescent Idiopathic Scoliosis when I was...Read More

Inspiring Scoliosis Instagram Accounts: My Top 10

Posted on April 29, 2019December 29, 2020 by Louise

Inspired by my own Instagram obsession, I thought I'd list my top Scoliosis Instagram Accounts to follow. I must admit, I am a little addicted to Instagram at the moment! Apart from Pinterest, Instagram is the main social platform that I use to try and raise awareness of this blog and scoliosis in general (shameless plug - you can follow me on Instagram here!) The thing about Instagram is, it can be incredibly inspiring IF you follow the right accounts....Read More

Scoliosis Awareness Day 2019: Back the Back Walk

Posted on April 16, 2019April 13, 2020 by Louise

This Scoliosis Awareness Day (June 30th, 2019) I'm very excited to be taking part in the Back the Back Walk. This is an event organised by Freya, who also has scoliosis, to raise awareness of scoliosis, as well as some much needed funds for the Royal National Orthopaedic Hospital Charity and Scoliosis Campaign Fund. The RNOH Charity raises money to help the Royal National Orthopaedic Hospital at Stanmore provide world-class care for patients with musculoskeletal conditions, and to support the hospital's pioneering...Read More

Your Scoliosis Stories: Rachel’s Story

Posted on June 21, 2018April 13, 2020 by Louise

In the spirit of scoliosis awareness month, I have another amazing inspirational scoliosis story to share from one of my lovely readers :) The latest story comes from Rachel, who shares her brave journey with scoliosis below. If you'd like to share your scoliosis story to be featured on this blog, please do get in touch! Your Scoliosis Stories... Rachel's Story I think anyone with scoliosis will agree with me when I say that it's unforgettable the minute you have...Read More

Scoliosis Awareness Month: Interview with Roslyn-Rachel

Posted on June 12, 2018October 5, 2020 by Louise

As June is scoliosis awareness month, I wanted to share some positive scoliosis stories, which will hopefully help to inspire you if you suffer with scoliosis or have had, are waiting for or recovering from scoliosis surgery. I first "met" Roslyn Rachel via Instagram and I have to say, I find her such an inspiration to follow. She is a personal trainer and also runs FlexFitDance.com. I think she is an incredible role model for those of us with scoliosis,...Read More

Your Scoliosis Stories: Lorraine’s Story

Posted on July 23, 2017April 13, 2020 by Louise

Firstly, I just want to say a huge thank you to those who have submitted their Scoliosis Stories to my blog. It means a lot to me and I think these stories really help and inspire others who suffer with scoliosis. The latest scoliosis story comes from Lorraine, who shares her experiences with scoliosis and having scoliosis surgery in the 1970's. Your Scoliosis Stories: Lorraine's Story 1970's Surgery I was diagnosed with idiopathic scoliosis when I was 13. I was...Read More

Your Scoliosis Stories: Mark’s Story

Posted on June 30, 2017April 13, 2020 by Louise

The next scoliosis story comes from Mark, who offers a different perspective. Mark is 62 and had his first scoliosis surgery 30 years ago. Your Scoliosis Stories: Mark's Story 30 Years Ago As a young boy I had a lot of medical problems. Among them I remember having asthma, anaemia, and a heart murmur. So at the age of 12, our family doctor suggested a complete physical be done at the University Hospital in Madison. After a whole day of tests,...Read More

Your Scoliosis Stories: Sadie’s Story

Posted on June 30, 2017April 13, 2020 by Louise

Well, today is the last day of June (can you believe it?) which means the last day of Scoliosis Awareness Month. To finish off the month, I thought I'd post a couple more of your scoliosis stories that I have received. Please keep them coming and I'll be sure to feature them on my blog. :) Today's scoliosis story comes from Sadie, you can read her experiences with scoliosis below... Your Scoliosis Stories: Sadie's Story I just wanted to say...Read More

Your Scoliosis Stories: Kacey’s Story

Posted on June 10, 2017April 13, 2020 by Louise

As June is scoliosis awareness month, I thought I'd kick off a feature I've been meaning to do for a while: Your Scoliosis Stories! This is a feature where I invite you, my readers, to share your own scoliosis stories so that we can all help and inspire each other. Below is the first story in this series, featuring Kacey and her very recent brave experiences with scoliosis surgery. Kacey is only 3 months post op but it sounds like...Read More